By Anita Lesko, BSN, RN, MS, CRNA, CAS (and proudly autistic)

Communicating with autistic individuals can be a constant challenge for healthcare providers and therapists, even if they don’t always know how big of a challenge it is.

Lack of specific training and knowledge in the healthcare field is constantly leading to autistic people not being diagnosed or treated properly as well as often avoidable situations that impede timely or effective care. It is called Autism Spectrum Disorder (ASD) for a very good reason. There are individuals at one end of the spectrum who cannot speak, or need total assistance with activities of daily living, and at the other end of the spectrum are highly gifted people who are brilliant and need no assistance at all.  There is a wide range of symptoms, severity of those symptoms, skills, and level of disability.

The Very Important Missing Pieces of Communication for Many with ASD

young girl in speech therapyAutistic Individuals also face challenges understanding body language, as well as the nuances of vocal tones.  Body language is the second form of communication that humans use to express their thoughts, emotions, and desires.  Those with ASD typically have difficulty at best, but usually no skills at deciphering what a person is saying with facial expressions or body language.  There is also the lack of the ASD person of making eye contact.  Many in fact will describe trying to look someone in the eye as literally being painful.

While the often-cited numbers from Professor Mehrabian of 55 percent of messaging being body language, 38 percent being tone and 7 percent being the actual verbal message itself may be in some doubt, regardless of what the exact numbers are anyone who does not understand these communication nuances is very clearly at a distinct disadvantage in understanding their world and the messages of the people in it.

This is why it is all the more important that healthcare and therapy providers are aware that they need to express as much as possible of their message in ways that will be most easily understandable by that individual, which is not always the same. Learning how to adapt to each client is important to optimize outcomes for providers and clients alike.

Now that you have an overview of the communication difficulties of autistic individuals, you are wondering exactly how are you going to be able to effectively interact with your next autistic client, wherever they may be on the spectrum.  The autistic individual may appear not to hear what you say to them, they may not respond to their name, or they may appear indifferent to any attempts you make at communicating with them.

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Tips for Communicating with a Autistic Individual

Tip 1: Reduce Unnecessary Sensory Input

The first thing which is often very helpful is take the ASD patient and their parents/support person to a very quiet, private room where it’s dimly lit with minimal medical equipment in the room.  There shouldn’t be other patients or staff in the room.  You want to create a relaxed, peaceful environment.  That in itself will usually calm the individual down.  This will help to decrease the amount of sensory overload that is affecting the patient.

Tip 2: Figure out how that Individual Communicates Best

The next thing you need to do is ask the parent how the child/adult typically communicates. They can provide a baseline expectation of how the individual will react to you.  Observe the way they communicate with their parent or whoever they are with.  You will be able to observe if they use words or any type of gestures.   Ask them for suggestions on how you should approach the individual.

Remember, that parent is with that child 24/7 and knows their every move.  They are your best resource for your client.

Tip 3: Written Communication

Another point to be made is that of an autistic individual wishing to use written communication as their means of interacting with the healthcare team.  Some individuals will feel more comfortable using either hand-written notes or a keyboard of some type to communicate their needs to you.  In any case, remain flexible and show your willingness to provide accommodations to the individual.  And again, incorporate the parent or support person in the patient’s care. By doing so, that will go a long way in the client’s trust in you. 

Showing your knowledge of autism will result in a very positive experience for the autistic individual, and yourself as well!  Written communication may be in the form of writing on a piece of paper or pad, texting from their phone, an iPad or similar device, or a laptop computer.  Whichever one they choose, simply go with the flow, allow them time, and be patient.  Keep in mind that the person probably feels anxious, self-conscious, and maybe having great difficulty processing everything that’s going on.

In Conclusion…….

Healthcare and therapy providers do not always know when they will work with an autistic individual.  Also, so much focus is on autistic children, it is easy to forget that there are millions of adults with autism out there in the world who will also come in for healthcare services.  At any time, you may have an autistic adult as your next patient.  Hopefully, this article will be a good start to help you be prepared to handle the situation.

While this article can help individual practitioners to be more aware and better assist autistic people, there is no substitute for system wide training to ensure that no matter who an autistic individual is working with, that provider is also aware of how to approach the individual.

Learn more about how your whole staff can be properly trained to be able to streamline care and make it more effective for you and your staff.

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nidcd.nih.gov/health/autism-spectrum-disorder-communication-problems-children
disabled-world.com/artman/publish/autism-language.shtml
autism.org.uk/about/communication/communicating.aspx
My Experiences with Visual Thinking Sensory Problems and Communication Difficulties. Dr. Temple Grandin
stanfordchildrens.org
stanfordchildrens.org
healthcentral.com/autism/c/1443/146027/dysgraphia-disorder/