The Rise of Autism Diagnosis in the Mid East: Where to get Training?
Autism diagnosis is on the rise in the Middle East and there is a massive shortage of trained professionals to work with these children.
True Prevalence Largely a Mystery; Awareness and Rates are Rising
There is a distinct lack of reliable numbers on diagnosis in the Mid East for autism and other related disorders, partially due to the lack of clinics and qualified medical personnel to work with them and diagnose them.
Limited Number of Autism Studies, Clinics and Resources
In a systemic review of the studies of autism in Arab Gulf Countries there were only 12 studies about autism conducted in the Middle East and only 2 of them looked at the prevalence of autism. While both reported relatively low numbers for autism, the systemic review noted that this is to be expected for countries that do not have a lot of resources available for diagnosis and treatment. There were a number of caveats about drawing too many conclusions from the limited data, explained here:
“Most reviewed studies shared 2 limitations. First, is the sample size, as numbers of cases and controls used were small and cannot be considered representative. Also, the recruitment of cases and controls was from specialized clinics/tertiary care institutions, which might be problematic when extrapolating results to community autistic children in GCC countries. Second, is that cases were recruited from pediatric wards, and none come from psychiatric clinics. The diagnosis of autism must include more comprehensive behavioral/psychological considerations to form a full picture about the disorder. The current study’s limitations were the small number of studies identified and absence of studies from 3 GCC countries, which precluded comparing prevalence of autism across countries.”- Systemic Review of Autism in Arab Gulf Countries
There is clearly a need for more healthcare professionals who can understand and treat autism.
New Board Certified Behavior Analysts (BCBAs) Soon No Longer an Option for Middle East
One of the top professional certifications in autism that has been very helpful in the past for many countries in the Middle East is Board Certified Behavior Analysts (BCBAs). While there are not a lot of them in these countries, they focus almost exclusively on autism. This means that each individual clinic will be seeing significantly higher numbers of students with autism than a clinic with mixed specialties or one that focuses more exclusive on speech therapy, occupational therapy or physical therapy. Unfortunately for many of these countries, the Behavior Anaylst Certification Board (BACB) just announced that it will stop accepting new applicants from outside the U.S. and Canada in 2023.
This means that while the people that have already started their training will be able to complete it, there will no longer be people in the Middle East being trained in ABA therapy.
This is somewhat problematic for the area.
“The demand for services far outweighs the ability of current qualified staff to meet the need. This will continue to increase…With a severe deficit in local professionals trained in ABA, the provision of ABA services is significantly restricted within all GCC states.”- Dr. Michelle Kelly
Kelly also notes that this lack of trained professionals tends to attract people of ‘varying qualifications’ for establishing treatment options and that licensing and regulation is only beginning in most of these areas.
In countries that typically do not have a lot of options in this area, ABA clinics have been a huge help to make highly qualified treatment available and to raise awareness in their communities.
As of 2017 here are the number of clinics that utilize Applied Behavior Analysis (ABA) therapy included:
- Dubai: 24 (Abu Dhabi: 8)
- Saudi Arabia: 7
- Qatar: 3
- Bahrain: 3
- Oman: 1
While these clinics play a large part in making diagnosis and treatment available throughout the Middle East, ABA is also only one type of therapy. There are other evidence-based practices as well and some forms of therapy will be more effective for some children than others.