Special Needs and Transitioning into Adulthood

By Elayne Pearson, C.A.S., Special-needs Preparedness Specialist, is an award-winning writer, poet, presenter, advocate, author, and actress.

It’s May, and some nice graduation announcements have arrived at the house. While I’m happy for each student, it occasionally picks at an old wound from Heidi’s high school graduation (or the lack there of). I ponder if I did the right thing by not having our painfully shy teenager participate in the formal commencement exercises like her Special Needs Educators had encouraged.

It’s hard to know whose advice to listen to.…

Back when Heidi was in preschool, Kim Peek, the autistic savant who inspired the Oscar-winning movie, Rainman, was traveling around the country sharing autism awareness. Kim was a phenomenon. When he and his father, Fran Peak, were invited to speak to a nearby Christian youth group, I was strongly prompted to attend.

The peaceful drive through rural towns with their snow-packed fields, farms, and shaggy horses felt surprisingly at home to me.

Continue Reading →

Share:
0

Is Your Home Influenced by Down Syndrome (Trisomey 21)?

 

Elayne_And_Heidi_In_White_Touched-up[1]By Elayne Pearson, CAS, Speaker/Author/Disability Advocate

World Down Syndrome Day, March 21st – was created for public awareness, promoting fundamental freedoms, and encouraging inclusion for individuals with Down syndrome.

Many know Down syndrome is a genetically-based condition resulting in a range of mental impairments and developmental delays. It’s official term, Trisomy 21, is caused by an unusual division of the two 21st chromosomes into three. Hence, the term Tri-somy 21.

So, March is the third month, and the 21st day designates World Down Syndrome day. Get it?  Trisomy 21 on 3/21. Clever, huh?

Scientists hypothesize the chromosomal change happens at conception, and currently, there is no known cure for Down syndrome. I could go on with boring scientific stuff, but I won’t. But believe me, life with a child with Down syndrome is anything but boring! We testify of that. Having Heidi in our family has been a joyous adventure for almost 30 years.

Continue Reading →

Share:
0