By Carol S. Weinman, Esq., Autism Legal Specialist
What better time to initiate a conversation about encounters with the criminal justice system than during Autism Awareness Month in April? While it may be well known that many individuals with Autism Spectrum Disorder (ASD) are victimized and bullied, it often comes as a surprise to learn that individuals with ASD are increasingly finding themselves detained in the back of a police wagon or seated in a courtroom at the defendant’s table. That’s why the demand for education and awareness on this timely topic is greater than ever before.
By Elayne Pearson, CAS, Speaker/Author/Disability Advocate
World Down Syndrome Day, March 21st – was created for public awareness, promoting fundamental freedoms, and encouraging inclusion for individuals with Down syndrome.
Many know Down syndrome is a genetically-based condition resulting in a range of mental impairments and developmental delays. It’s official term, Trisomy 21, is caused by an unusual division of the two 21st chromosomes into three. Hence, the term Tri-somy 21.
So, March is the third month, and the 21st day designates World Down Syndrome day. Get it? Trisomy 21 on 3/21. Clever, huh?
Scientists hypothesize the chromosomal change happens at conception, and currently, there is no known cure for Down syndrome. I could go on with boring scientific stuff, but I won’t. But believe me, life with a child with Down syndrome is anything but boring! We testify of that. Having Heidi in our family has been a joyous adventure for almost 30 years.
Written by Rachel Wise (article republished with permission)
In this article you will find 15 supportive behavior strategies for children on the autism spectrum (some strategies can be used with adults as well). Many of the strategies can also be used to help children without autism who have challenging behaviors.When caring for or working with a child with autism, a parent, teacher, or other adult may become frustrated with the child’s behavior. Behaviors can come on suddenly, last for hours, be hard to control, or make the adult scared or embarrassed.
Being a caregiver is hard. The scheduling of medical, dental, school and after school activities and appointments is daunting. Let us not forget meal prep and clean up followed by the constant cleaning after little people who leave toys, and food everywhere. Yes, being a caregiver is difficult, and it is not easy when one is the caregiver of a child with Special Needs such as Intellectually Disabilities or Autism. Is there care for the caregiver and if so, what does care include? Here are some helpful tips to help caregivers.
By Elayne Pearson, Special Needs Preparedness Specialist, CAS
Most children love Halloween, but it can be tricky―and downright scary for some. This holiday can be problematic for people with sensory issues―from the intense sights, sounds, smells, tastes, and textures bombarding them each October. If you have a child affected by a special-need, especially autism, Halloween can be a complex time. It can conjure a cauldron of concerns―resulting in amplified anxiety, increased impulsivity, deeper withdrawal, and even insomnia and nightmares. Yikes!
Over the many years with Heidi Ann (our little pumpkin with Down syndrome and autism) I learned several strategies to make this crazy/creepy holiday not only a happier one for her, but a sane one for us. My acronym “HALLOWEEN” offers options, cautions, and examples to help set a better tone. Continue Reading →
By: Sheryl Rosin Ph.D.,CCC-SLP, Owner/Director of Palm Beach Speech-Language Specialists, CAS and Trainer for IBCCES, Adjunct Professor, Nova Southeastern University
I have been working with individuals with autism for 20 years and have met many interesting and exciting people along the way. In this blog, I have someone that I would like to introduce to you that I believe is an extraordinary person. His name is Dominik and he is 14-years-old. Dominik has diagnoses of autism and apraxia and is essentially non-verbal with his spoken language, but is definitely NOT non-verbal when using other means to communicate aside from the spoken word. Upon meeting Dominik, you may assume that he has limited communication skills, but since we presume competence when working with our clients, I learned that the opposite it true. Dominik has a passion for writing and using language to communicate his vast interests. One of the ways he has learned to do this is through an augmentative communication application called “Speak for Yourself (SFY).” SFY runs as a communication device on the iPad and uses synthetic speech to aid individuals with their expressive language output. It is based on core vocabulary and allows the person to communicate using generative language. Dominik has learned to use the augmentative communication system to express his wants and needs, feelings, hold conversations with others, and to communicate his expansive knowledge and interests in a variety of topics. Our conversations using AAC have ranged from the etiology of autism to future careers. Dominik thinks that vaccines “are the culprit of autism” and wants to be “a neurologist” when he is older. When Dominik communicates using AAC, he let us into his amazing world of thought. Not only does he use SFY; he can type on a computer keyboard, write with facilitated assistance, and is now starting to use verbal speech as AAC has been a bridge to developing spoken language for him.
It is called Autism Spectrum Disorder (ASD) for a very good reason. There are individuals at one end of the spectrum who cannot speak, or need total assistance with activities of daily living, and at the other end of the spectrum are highly gifted people who are brilliant and need no assistance at all. There is a wide range of symptoms, severity of those symptoms, skills, and level of disability.
By Taveesha Guyton, Social Worker & soon-to-be CAS
I am a social work professional whose expertise is working with the intellectually-disabled and population of individuals with autism. I really love my job and who I work for. My sole purpose in my position is to provide resources, education and advocacy for this steady growing population, which affects 1 in 68 births in the United States.
1. Listen to you clients.What I want for my clients is very different from what they want for themselves. Many times in the field, professionals who work with clients look at the end result versus looking at the here and now. I have learned to listen what is being said and sometimes what is not being said.
2. Provide Choices.Providing choices. It is important to exercise the ability to choose. Providing options are the best way for people to find out what they like and do not like and it also helps create more conversation about many other things. Choice making is a skill I feel is not exercised enough with this population. (Check out great visual support ideas here.)
3. Ensure proper supports are in place.What is needed for this individual with autism to maintain a ” normal” life is usually the question asked and how do we as a professionally supportive community help create this world for this individual? Will the individual need vocational rehabilitation because their goal is to earn competitive wages? If the individual’s goal is to live alone, will this person need the assistance of a Supported Living Coach? Will this individual need guidance for activities of daily living such as medication management, making doctor’s appointments, meal preparation and grocery shopping? What about socialization and community-based outings? Will the individual need someone to help integrate them into the community?
In assisting in the coordination and maintenance of services for the individual with special needs or autism, social workers are able to make the lives of individuals with autism a little better.
By Elayne Pearson, Special Needs Safety/Preparedness Specialist, CAS
More than one mother recently confided that getting her children ready to enter school with its fees, clothes, and required items was a real financial burden—and those students weren’t even in high school yet. I recalled those same September concerns years ago, knowing taxes were also due in November, and Christmas was just around the corner. With four amazing daughters, including Heidi (our beautiful daughter with Down syndrome and late-onset autism) my husband Rod and I felt so blessed, but our budget and stress levels were very stretched. With Heidi’s special needs for good quality vitamins/food, calming craniosacral therapy appointments each week, and educational toys and more – my motto, “keep it up!” served us well. Today’s parents can live this way, too, with some of our common sense advice.
Imagine going the first fifty years of your life with an invisible disorder that you don’t know you have. It affects every move you make, every word you speak, and simply everything you do. You realize you are different than other people and never fit in, only you don’t understand why. As a child, other children run away from you. You try and make friends only no one wants to be your friend. You have all kinds of sensory issues that others don’t seem to have. Your sense of taste, smell, touch, hearing, and vision are amplified as if you live in IMAX 24/7, 365 days a year. Every social interaction seems to end up as a negative one. When you attempt to join in on conversations at work, everyone ignores you as if you are invisible. You are a target of bullying and harassment, not only throughout your school years, but at your workplace as well. You spend fifty years feeling like you are on the outside of life looking in. As if there’s a glass shield keeping you away from joining in with others. You see people together out in restaurants, in malls, everywhere you go, you see them laughing, talking, having fun. Yet there you are, alone. You try and get used to it, but deep inside you long for even just one friend. The feeling of loneliness at times totally consumes you. Holidays are the worst, as you are aware that others are gathering for big celebrations, as you are home alone yet again. Sadly, this is all common to individuals on the autism spectrum.