IBCCES Board Member Dr. Stephen Mark Shore rang in Autism Awareness on the Nasdaq bell Thursday, April 6 to celebrate April’s Autism Awareness Month. Congratulations Dr. Shore!
By Guest Contributor Claudia Cortez
World Health Day is April 7 and this year the World Health Organization (WHO) is tackling depression. Per statistics from the Anxiety and Depression Association of America, 40 million adults suffer from depression in the United States alone. Globally, that number escalates to an astounding 350 million people. The prevalence among children and adolescents is much higher: 1 in every 4 teens will have a major depressive episode in high school. Depression also accounts for the second leading cause of death among 15 to 29 year olds–suicide. In an ongoing effort to raise awareness, reduce stigma, and mobilize the community to learn, recognize, and treat depression, WHO has implemented a year-long campaign with the slogan, “Depression: Let’s Talk.” The campaign began October 2016, but it’s not too late to take part in the conversation.
My daughter’s future is bright. She is thriving at school because they are meeting her every need with an admirable flexibility, thoughtfulness and respect. All of which has been achieved with close cooperation between home and school, something that I believe are key factors in improving a child’s quality of life. Why? Because, on one hand we have the child’s parents, who are experts in the child and on the other hand we have the teacher, which is an expert in teaching methods and goal setting. When these two respect each others roles and take the time to listen and work together, magic happens!
Our teacher’s mentality is priceless. They have so much respect for my daughter and they put every effort in customizing her curriculum and learning environment to her needs. As an example I could mention that she always arrives late for school. Is that okay? Imagine this; she arrives into an empty school building and is exposed to minimum sensory input, which means that her stress levels are low and she gets a good start of the day. Otherwise it would take her teachers about an hour to unwind her after a chaotic school start and a maximum sensory input. That kind of a solution requires flexible thinking and caring.
I’ve written many articles about how the lack of having a peer role model growing up on the spectrum affected me. I didn’t know about Dr. Temple Grandin and others who had autism that I could look upon to show me how far I could go. As I reached adulthood though I learned about advocates such as Dr. Grandin, Carly Fleischmann, Alexis Wineman, John Elder Robison, Amy Gravino, Jesse Saperstein, the list goes on and on.
One person though who I particularly look up to is none other than international speaker Dr. Stephen Shore. Stephen Shore is not only a dear friend but also one of the biggest role models I currently have in my life.
When I first met Stephen it was at an Autism Society of America conference. He immediately befriended me and wanted to get to know me better. After our first meeting I’d go on to read several of his books and later would be able to contribute a chapter to a book he co-authored called College for Students with Disabilities: We Do Belong. I to this day use his quote “if you’ve met one individual with autism, you’ve met one individual with autism” in a majority of my presentations. It shows how wide and unique our spectrum truly is.
Another quote which I enjoy from Stephen is on his website where he mentions the “unlimited potential for people on the autism spectrum.” What a wonderful message. I think that’s something our entire community wants to see for our loved ones.
Now even years later it’s been astonishing to see how many times our paths have crossed. Although we are only a trade ride away from each other, me being from New Jersey and Stephen teaching in New York at Adelphi University, we still end up running into each other around the world speaking at different events. Most recently, our paths even crossed at ISCRD 2017 hosted by IBCCES in St. Augustine, Florida.
By Anita Lesko, BSN, RN, MS, CRNA
I have the good fortune to be a friend of Dr. Temple Grandin. We have a lot in common. We are both autistic, and we share a very similar youth that played a big factor in our adult life. We both started having jobs at a very early age. Temple often talks about her early days, when her job was to greet guests at the door for her mom’s dinner party, and take their coats to hang up. Yes, it was a job. She was given a responsibility to carry out.
Among her numerous other childhood jobs was the one I, too, did for many years — mucking out horse stalls. In conversations with Temple on the phone, we’ve talked about those days of our teenage years spent shoveling out one stall after another. We both love horses and being around them. It was peaceful and it was also a form of therapy. In essence, it was our occupational therapy.
All the childhood jobs we did prepared us for the day when we’d start our careers. We were used to working, showing up on time, following orders from a boss, figuring out how to get a job done. It was just a regular part of our life. So, when the day came to embark into our careers, we really didn’t have to transition into anything. We were already there.
Someone once said that ‘sarcasm is a metric for potential.’ Often at times though this is one of the hardest struggles for those with autism growing up.
A lack of sarcasm is often one of the most common characteristics of struggling with an autism diagnosis along with things such as social and communication issues, difficulties reading body language, using different tones in their voices and many more.
I remember as a young boy on the spectrum in computer class and hearing a joke that I didn’t find funny. It was a sarcastic joke by our teacher and while everyone else in the class laughed I was there completely blank. A girl looked at me after the joke had stopped like I had three heads.
By Carol S. Weinman, Esq., Autism Legal Specialist
What better time to initiate a conversation about encounters with the criminal justice system than during Autism Awareness Month in April? While it may be well known that many individuals with Autism Spectrum Disorder (ASD) are victimized and bullied, it often comes as a surprise to learn that individuals with ASD are increasingly finding themselves detained in the back of a police wagon or seated in a courtroom at the defendant’s table. That’s why the demand for education and awareness on this timely topic is greater than ever before.
By Elayne Pearson, CAS, Speaker/Author/Disability Advocate
World Down Syndrome Day, March 21st – was created for public awareness, promoting fundamental freedoms, and encouraging inclusion for individuals with Down syndrome.
Many know Down syndrome is a genetically-based condition resulting in a range of mental impairments and developmental delays. It’s official term, Trisomy 21, is caused by an unusual division of the two 21st chromosomes into three. Hence, the term Tri-somy 21.
So, March is the third month, and the 21st day designates World Down Syndrome day. Get it? Trisomy 21 on 3/21. Clever, huh?
Scientists hypothesize the chromosomal change happens at conception, and currently, there is no known cure for Down syndrome. I could go on with boring scientific stuff, but I won’t. But believe me, life with a child with Down syndrome is anything but boring! We testify of that. Having Heidi in our family has been a joyous adventure for almost 30 years.
Written by Rachel Wise (article republished with permission)
In this article you will find 15 supportive behavior strategies for children on the autism spectrum (some strategies can be used with adults as well). Many of the strategies can also be used to help children without autism who have challenging behaviors.When caring for or working with a child with autism, a parent, teacher, or other adult may become frustrated with the child’s behavior. Behaviors can come on suddenly, last for hours, be hard to control, or make the adult scared or embarrassed.