On the Outside of Life Looking In: Trapped Inside an Autistic Body

anita-lesko-1-500pxBy Anita Lesko, BSN, RN, MS, CRNA

Imagine going the first fifty years of your life with an invisible disorder that you don’t know you have.  It affects every move you make, every word you speak, and simply everything you do. You realize you are different than other people and never fit in, only you don’t understand why.  As a child, other children run away from you.  You try and make friends only no one wants to be your friend.  You have all kinds of sensory issues that others don’t seem to have.  Your sense of taste, smell, touch, hearing, and vision are amplified as if you live in IMAX 24/7, 365 days a year.   Every social interaction seems to end up as a negative one.  When you attempt to join in on conversations at work, everyone ignores you as if you are invisible.  You are a target of bullying and harassment, not only throughout your school years, but at your workplace as well.  You spend fifty years feeling like you are on the outside of life looking in.  As if there’s a glass shield keeping you away from joining in with others.  You see people together out in restaurants, in malls, everywhere you go, you see them laughing, talking, having fun. Yet there you are, alone.  You try and get used to it, but deep inside you long for even just one friend.  The feeling of loneliness at times totally consumes you.  Holidays are the worst, as you are aware that others are gathering for big celebrations, as you are home alone yet again.  Sadly, this is all common to individuals on the autism spectrum.

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Meet Twiddle, a Sensory Resource for Autism

Throughout her life, Lily had been marvelous with her hands. She loved creating beautiful knitted sweaters, delicate embroidery and award-winning recipes. As she aged, Lily’s eyesight began to fade, and those wonderful hands became idle and chilled. The Twiddle gave Lily’s inquisitive hands something to keep them active, engaged and warm. Lily was also reminded of how much she was loved, even when her daughter, the creator of Twiddle, couldn’t be with her.

Meet Twiddle, a new Certified Autism Resource that was created as a sensory tool for individuals with autism, dementia and other sensory conditions. Twiddles are playful comfort aids that assist people of all ages with a range of sensory-related conditions. Providing comfort or activity as needed,Twiddles assist in organizing tactile, visual and auditory input. They are also a way of expanding someone’s personal space, and with more than 25,000 sold since 1997, Twiddles provide an affordable, drug-free therapeutic alternative. Continue Reading →

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Autism Awareness in Nigeria: Meet Nobelova Gradani

IBCCES Certified Training Partner Nobelova Gradani is educating the Nigerian community about autism in effort to reduce stigma about ASD.

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Meet Helen Obiageli Oshikoya, the founder of Nigerian-based Nobelova Gradani. Nobelova Gradani is an IBCCES Certified Training Partner that was created to help train and educate professionals that work with individuals with autism in Nigeria.

As part of their self-funded effort to address the burden of autism in Lagos Nigeria, the organization has been involved in many efforts since 2012, including school-based awareness programs, screening of at-risk children and training of middle-level intervention service providers.

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Meet IBCCES: Amanda Casey

AmandaAmanda Casey is the Customer Experience Manager at IBCCES. Her attention to detail and passion for helping others proves a great asset in her role. Amanda ensures that all individuals going through our certification program have a smooth process from start to finish.

In her previous role as a Tutoring Director, Amanda has worked with children, adults, parents, families, educators and therapists throughout the journey to provide a successful, and comfortable, experience for everyone involved.

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Reputation Matters: Personal Branding for Autism Professionals

LidaBy Lida Citroen, IBCCES Board Member, LIDA360

Everyone has a personal brand – whether you are a politician, celebrity, physical therapist, or teacher  — that forms their reputation, in person and online. Right or wrong, other people’s perception of us determines whether they want to work with us, hire us, partner with us, or interact with us.

In the 20+ years I’ve worked as a personal branding and reputation management specialist, I’ve helped define, design and re-direct the perceptions of my clients in industries across education, technology, healthcare, finance, coaching, and many more. I can say with all certainty that your personal brand is directly related to the opportunities you attract and the credibility you hold in your field.

As an Autism professional, you interact with educators, students, parents, administrators and other colleagues, who form perceptions of you that directly influences whether they see you as valuable and relevant to them.

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Featured Certified Autism Specialist: Dr. Ann Marie Leonard-Zabel

Featured CAS or ACAS Name: Dr. Ann Marie Leonard-Zabel, CAS, ACAS 1 and ACAS 2; Full Professor of Psychology; School Neuropsychologist; Clinical Instructor and Clinical Supervisor

State/Country: Massachusetts

School/ Organizations: Curry College Department of Psychology; NEALAC Clinic – private practice; KidsInc School Neuropsychology Post-Graduate Certificate Program

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International Autism Training and Certification for ASEAN Professionals in Singapore

St. Andrew’s Autism Centre (SAAC) in collaboration with the International Board of Credentialing and Continuing Education Standards is presenting a two-day conference in Singapore September 8-9 to bring a world class autism training and certification to professionals in Southeast Asia. The internationally-recognized program is regarded as the gold standard in certification that recognize individuals with advanced knowledge in autism.

During the two-day training conference, attendees will take part in hands-on activities and group sessions with other education and therapy professionals from around the world. Collaborative sessions will teach how to leverage autism traits and characteristics as potential springboards for success in education and health care. Attendees will also take part in engaging discussions on effective self-advocacy, meaningful engagement in the community and how to effectively model training for individuals with autism. Through a series of two-day conference sessions, they will provide attendees with expert knowledge centered around the IBCCES 10 Areas of Autism Competency.

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15 Behavior Strategies for Children on the Autism Spectrum

autism-high-five-e1446754762889-210x210by Rachel Wise, CAS

In this article you will find 15 supportive behavior strategies for children on the autism spectrum (some strategies can be used with adults as well). Many of the strategies can also be used to help children without autism who have challenging behaviors.

When caring for or working with a child with autism, a parent, teacher, or other adult may become frustrated with the child’s behavior. Behaviors can come on suddenly, last for hours, be hard to control, or make the adult scared or embarrassed.

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Arm in Arm with Autism in August? Beat the Heat

By Elayne Pearson, Special Needs Safety/Preparedness Specialist

Elayne's daughter, Miss Heidi Pearson.

Elayne’s daughter, Miss Heidi Pearson.

With temperatures over 100 degrees in much of the United States, most families are challenged simply keeping everyone comfortable, hydrated, and content.  Then, if you add into a household the mix of individuals affected by autism, with their tendencies to be overly-sensitive to temperatures, frustration when routine is disrupted, and struggles with impulsivity—August can be a very tricky month for everyone.  This was too true for our family when Heidi and her three older sister were growing up.  With her dual-diagnosis of Down syndrome and autism, she was cute as a pixie, but often kept us on high-alert, (or “Heidi-alert”). I recall countless summer vacations, where it sure didn’t feel like a vacation.

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New School Year Resolutions

By Brigid Rankowski

brigid

Once again, we are at the time of year that brings about so many mixed emotions for professionals in the education field; The beginning of a new school year. The smell of fresh markers, the sight of a completely clean classroom, a desk without piles of paperwork are all soon to be fleeting things as the momentum of the school year kicks things into high gear. For some educators who are taking on new positions or responsibilities this year, there may we waves of apprehension wondering how everything will manage to get done on time. Others who have been in the field for a while may wonder how they can incorporate new ideas into their lesson plans to keep students interested. There are so many different situations going on and everyone is different.

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